Hi, my name is Jaclyn. Thank you for visiting my website. My mom and I will try to keep you updated on my journey to get a new kidney. My journey started when I was born, but nobody knew it. It wasn't until I was about 8 years old that I started feeling dizzy a lot, but my symptoms confused all of the doctors. My mom took me to see Nephrologists, Hemotologists, Endocrynologists and Cardiologists at several different hospitals and nobody could diagnose me. It was very frustrating. In Feb 2007, I was feeling very sick again and had some swollen glands on my neck. My mom took me to my PCP and they ran some blood tests. That is when they determined my kidneys were failing. Dr. Cadnepaphornchi (Dr. C, a super smart Nephrologist at Childrens Hospital in Colorado) sent some of my blood work to Dr. Hildrebrandt, Professor of Pediatrics and Human Genetics at the University of Michigan, where he diagnosed me with NPHP type 1 (juvenile nephronophthisis), which causes kidney failure between the ages of 13 and 19.

On Jan 2nd of this year (2008), I started hemodialysis to clean the toxins out of my blood three times a week at Childrens Hospital in Colorado. It takes about 1/2 hour to get hooked up to the dialysis machine, 3 hours to drain and clean my blood and another 1/2 hour to unhook from the machine. I feel very weak and have awful headaches during and after dialysis. I hope to get a new kidney soon so that I can enjoy a wonderful, healthy life!!

Thank you from the bottom of my heart for all of your prayers and support.....and for visiting my new website!